~ We Are Home...Again ~

As you all have probably figured out we are home...again! When we were in the hospital its easy to post on the blog everyday but being home is another story. We are staying VERY busy with doctors appointments and the everyday routine with a baby.

Last time we posted we were getting ready to go to the step down. Once we got to the step down on Friday (11-05-2010) everything went as planned. They told us if he had a good night that we could go home that next day. We were very shocked but so excited! We were a little nervous as to be expected but we were much more comfortable than we were last time. We took care of him that night and he did so good. We got very little sleep because someone was constantly coming in and out of the room. That morning around 6 am the doctor came in and said we were able to go home. You couldn't wipe the smiles off of our faces...Jordan was going home again! We started packing up and getting ready but as most of you know hospital time is very SLOWWWW! We didn't get to actually leave the hospital until four that afternoon. Then we had to go get his prescriptions filled and we were on our way home to Albany.

Once we got home we couldn't be more blessed to see all the surprises "someone" had left us. Thank you so much sweet Aunt Mallory! We are getting way to spoiled with all the good home cooked meals and desserts. That night he slept so good...he was excited to be back in his own bed. We had lots of company Sunday (10-07-2010) everyone said they wanted to come see us but we have figured out they really want to see the baby. Everyone walks in the door and says "Aww...he is so cute! Aww...we missed him so much" but no one ever says "we missed you too." He has changed our lives in so many wonderful ways and wouldn't change any of it.

Monday (10-08-2010) home health care nurse came by to see him. She gave us a good report - he has started back gaining some weight. All of his vitals signs were good and she was very proud of him. Tuesday we had a cardiologist appointment at 1:30pm. We have recently changed cardiologists to a doctor in Macon. When we were in the hospital we spoke with the surgeon about changing and he agreed. It only made sense considering we were driving to Atlanta the night before his appointments, getting a hotel room and then having to drive all the way back. Jordan can only tolerate the car seat for around two and a half hours after that he is out of control. That morning we packed up and finally got out of the door only 45 minutes after our goal time to leave. We have come to the realization we will never get anywhere on time ever again. We made it to the appointment with five minutes to spare. The doctor was great...He was very detailed with all the information he was giving us. Jordan was continuing to gain weight and all of his vital signs were good. They did another echo on him to see how thing were looking. The shunt looked good and the heart squeeze was wonderful. His only concern was the valve that was messed up during the heart cath. Dr. K had tried to repair it while he was in the heart this last time but its still not functioning properly. The cardiologist said we will continue to watch it and hope that it gets better. If it stays the same he thinks it can be treated with medicines. If it gets worse then we will have to have a valve replacement and that is not the road we want to go down. Then he would have two major heart defects and his heart would have to work harder. Meaning it would wear out quicker the older he gets. So for now we will continue to watch it and just pray for it to repair itself or get smaller with time.

The rest of the week was kind of boring. We had a pediatrician appointment Thursday and they all loved him. They were amazing...They understand Jordan's situation and how the common cold could be fatal to him. We were allowed to go in the back door and straight to a room. His doctor is wonderful. He had all good news at that appointment also. We are so proud of him and he just laid there like a little man while she checked him out. He spent several hours with his Dee on Friday. I had doctors appointments for myself and as much as I would love to show him off I left him at home. If you were to see him out in public you would never think anything was wrong with him. For some reason no matter where you are people see a baby and they are instantly drawn to touch them. Especially older people...I can't be rude and say "Don't touch my baby." So the way to avoid him being touched by strangers is leaving him at home. He would rather be at home being held by everyone anyway.

We had lots of company yesterday (11-13-2010). Everyone wants to see the little miracle child - he loves all the attention! He has started looking around and smiling. He has changed so much in the last few days. I find myself just watching him for hours. We have been so blessed! We got some of our Christmas decorations from the attic yesterday. Seems a little early but things take a lot longer now days. Maybe I will have it all put out before Christmas. Jordan loves to look at lights so I can't wait to see him stare at the tree.

Today we are planning on taking it easy and just enjoying the day. Time seems to fly when you're having so much fun! I wouldn't change any of it. We have lots of doctors appointments this week also. Hoping and praying for more good news. Thanks again for every ones love, support and prayers!