We have been working so hard to raise awareness in the local area for CHDs. Jordan and I had a busy week and we are so glad to see nothing in our future this week. We do have a cardiologist appt Wednesday but that is it... YAY! That getting dressed every day is no fun! LOL He is so funny as my grandmother says "he smells a rat", when he wakes up and I am getting dressed he freaks out. He automatically thinks "doctors appointment"- poor fella can't catch a break.
Last Thursday - We went to Cuthbert(my Home town) and met with the Mayor and he signed a proclamation for the City of Cuthbert to recognize CHD Awareness week.
Monday- I met with Mayor of Albany - Dr Willie Adams and he signed the proclamation for the City of Albany to recognize CHD Awareness week.
Tuesday- Jordan was the star and was on WALB our local TV station. He really did well and I was so proud of him for being so sweet.
Wednesday- We went for a quick visit to see Jordan's new friend Olivia. Olivia needed to borrow Jordan's swaddle blanket so her mama and daddy could get a few hours of rest.
Thursday- We were so excited a day alone and we were staying in our PJs all day! NOT! Something just told me to check his oxygen saturation levels and they were 77-79. I remained calm but immediately called the cardiologist, they wanted his pediatrician to see him ASAP. So that meant I had to get dressed. Granny Lucy and Grandaddy Ron watched Jordan while I rushed and got dressed quickly, took him to the Dr to find out he has another ear infection and a viral infection. The doctor never really explained to me what his viral infection was, he just gave us antibiotics. I called the cardiologist after the appt to make sure it was OK for us to give Jordan the medicines he had prescribed. Then they tell me "If he doesn't get better and he started changing for the worse, take him to the ER." So trying to remain calm we monitored his oxygen levels for hours and both slept with one eye open all night.
Friday- He seemed to be doing much better. His sats are hanging around 79-80 so I can live with that number. I really feel like he is cutting teeth - EVERYTHING goes in his mouth and he drooling. He keeps his hands in his mouth all hte time.
We have a cardiologist appt this week and I am so ready. I just want them to check him out and make sure everything looks OK. If he were to tell us that we needed to be in Atlanta on Thursday for surgery it wouldn't be soon enough. We are so ready to get this dreaded time behind us and be able to enjoy him for a long time. I just find myself being so scared that something is going to happen and we won't be able to have surgery on March 1st. I am ready to have the shunt out and get him healed and happy.
We just want to say thanks to everyone for the love, support and prayers. We have been so blessed with praise for our hard work to raise awareness. I set a goal to help other and we have accomplished that goal. We have been contacted to do other media projects and also by some families that are on their own CHD journeys that just needed a comforting conversation. Please pray for Jordan to remain healthy and that God will continue to bless him everyday.
Thank you for coming here to support our family through this exciting but challenging period of our lives. As most of you are already aware, Jordan was diagnosed with Hypoplastic Left Heart Syndrome. We have set up this site to help keep our family and friends informed through the birth and surgical procedures of Jordan's life.
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