Wednesday, February 2, 2011

Update 02-02-2011

I can't believe it has been a month since I last posted... where does time go? We are all doing well and just enjoying being home with no excitement. We stay busy with doctors appointments and visits from family and friends.

We went for his heart cath on Jan 6, 2011 and it went as expected. The results of his pressures were good and they said we could proceed with the next surgery. While we were at Children's for his cath the doctor was a little concerned with his oxygen levels. His normal O2 levels are 84-80 but his that day were 75-65 so they decided they would keep him overnight. Which was fine with us because I couldn't imagine getting home and needing to be in Atlanta for an emergency situation. The next day they checked all of his levels and agreed he was ready to go home. Thankfully were on our way home by noon!

The following week after the cath Jordan developed a ear infection. I started noticing him pulling at his right ear. We couldn't tell if it was an infection or did he just find his ear? Home health care came that day and they agreed it was probably a ear infection. He had started getting congested and his O2 levels were dropping again. I took him to see pediatrician and he had a double ear infection. With two rounds of antibiotics they are gone and he is doing much better.

Dr. Kirshbom's nurse called me last week to confirm surgery. Every time the phone rings and it comes up Children's my heart stops. When I answered the phone Tracy wanted to make sure March 1, 2011 was still ok. She told me what to expect and when to stop his medicines. I just sat there and cried for hours after the call. I still question "why" but I am so thankful that Jordan is as healthy as can be for his condition. I am so thankful for him everyday! It will be super hard to hand him over to the doctors this time. It was hard last time but I still feel like I was in a bubble and don't remember half of what happenned.

CHD Awareness week is Feb 7-14th so I have been working on several little things to raise awareness. I just spoke with the Mayor of Albany and he will sign the Proclamation on Feb 7th and Randolph County will sign their Proclamation on Feb 8th. I have also got appointments set up with WALB (local tv company) and The Albany Herald (local newspaper). The Charter School will also be doing a fundraiser that will go towards research that same week. I am very excited that Jordan's broken heart may save someone else's life.

We went to the doctor today and he got a good report from the cardiologist. No changes and he says he is still good for surgery on the 1st. We also had an appointment with his pediatrician and his ear infection is all gone. He had to get his 4 month shots and he was not a happy camper! The doctor also told us that he is in the 25th percentile of weight and height. She said when he came for his 2 month check up he was so little the was not even on the chart. We are so excited that he is growing to be big and strong.

We are asking everyone to continue to pray for him to have strength to go through surgery. Please pray for the doctors and medical staff that will be caring for him. And also pray for us as we hand him over to the doctors. We love this little guy so much!

1 comment:

  1. Oh Wendy- I wish I could reach through the computer and give you a big hug. I know EXACTLY how you feel about Jordan's surgery- Aly also has surgery in March and I am NOT looking forward to it. :(
    I'm glad that he is doing so well and keep you always in my thoughts and prayers!