Thank you for coming here to support our family through this exciting but challenging period of our lives. As most of you are already aware, Jordan was diagnosed with Hypoplastic Left Heart Syndrome. We have set up this site to help keep our family and friends informed through the birth and surgical procedures of Jordan's life.
Wednesday, October 13, 2010
10-13-2010
GOD IS GOOD! We are so proud of this little man. He is such a miracle child. Today was another BIG day for him. He got his heart lines removed and his chest tube. He does not have lines or IV's other than one peripheral IV site that is not being used. He does have a feeding tube for now. He wasn't interested in taking a bottle today because he is on continuous feeds through his feeding tube so he was not hungry. Once they start him on bolus feedings, we are going to try to start feeding him from the bottle again. So his next big step is eating. With heart babies its hard for them to suck and breath at the same time. We will keep praying for him to eat well and continue gaining his strength. The nurse told us earlier we would be going to the step down unit tomorrow. We are so excited! This means we can stay with him 24/7 and we will be the ones taking care of him. They will teach us things to look for once we get home since he will still be sick. He will be very fragile until he has his next surgery. Please continue to pray for him and us! Thanks everyone for ALL the support!
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I will continue to keep you in my thoughts and prayers. He is doing GREAT! Step down is one step closer to home. Eating is a hard one. Hope did so much better when we got her home. She came home on NG feeds, but we got her to eat on her own after a couple of weeks.
ReplyDeleteHe is doing so great!! Like Paula said, eating is a tough one. But with Jordan's history so far, I would say he will pick right up on it pretty quick. :) Aly also came home on an NG but after a couple days she ripped it out and ate on her own after that. Always keeping Jordan in my prayers!
ReplyDelete(((heart hugs))
Congrats! Does he like his pacifier? That seems to be good training for a lot of our little ones to take a bottle. Especially one dipped in sugar water or mama's milk
ReplyDeleteHow very exciting! Praise God!!
ReplyDeleteWAHOO JORDAN!!! You are such a strong little boy! I am so happy to hear that you are doing so well. I know your mommies and everyone around you is enjoying holding you and loving on you now. Keep up the good work! We still pray for you day and night. We pray that you will keep on doing so well that you can soon go home. We Love you! Kristy and Kevin
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