Thank you for coming here to support our family through this exciting but challenging period of our lives. As most of you are already aware, Jordan was diagnosed with Hypoplastic Left Heart Syndrome. We have set up this site to help keep our family and friends informed through the birth and surgical procedures of Jordan's life.
Friday, October 29, 2010
10-29-2010
Jordan is doing better today. He is still intubated and resting peacefully. They are not going to make any sudden changes because they want him to recover from the stress of yesterday. He looks so much better now that he isn't struggling to breathe. Even thou this wasn't what was supposed to happen maybe it will make him stronger. They still don't know what happened or what is going on with him now. They keep saying its respirtory because the shunt looks good. I honestly believe that he was extubated to soon. Normally they have to have 3 CPAP trials (where they breathe on their own with the vent still in place) but they only gave him 1 CPAP trial and he barely passed it. Instead of doing another one they went ahead and extubated him. So I will always question if that is the reason why he bombed out.
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Prayer for Jordan! I hope today is an even better day for him. I know how frustrating (and scary!) it is when they just don't have answers for why something happened. Wyatt desatted a few times and they couldn't figure out why. During his last hospital stay we saw sats in the 40s and maybe even the 30s if I remember correctly. They put oxygen on him and even that wasn't helping. After x-rays and an echo (both came back fine), they said "maybe he is coming down with a cold" or "maybe he is teething" and "we just don't know." Then all of a sudden he smiled and his sats jumped up into the 90s (cuz he was on oxygen) and he was fine after that. It was the most bizarre thing ever. It freaks me out that they have no idea what caused it.
ReplyDeleteIt's sooo hard when they don't have answers for you. Hang in there! <3