
Thank you for coming here to support our family through this exciting but challenging period of our lives. As most of you are already aware, Jordan was diagnosed with Hypoplastic Left Heart Syndrome. We have set up this site to help keep our family and friends informed through the birth and surgical procedures of Jordan's life.
Friday, October 8, 2010
10-08-10 ~ 6:00 a.m Update
I just got off the phone with Jordan's night nurse. She said he had a good night and all of his levels are stable. They are slowly weening him off of his oxygen and breathing machine. Please continue to pray for this amazingly strong little boy.
Thursday, October 7, 2010
Remaining Stable
We have spent the most of the day by Jordan's bedside. His levels are remaining stable and constant. Right now that is their main focus. His blood pressure and oxygen levels are where they need to be. The surgeon came by today and said they would close his chest on saturday or sunday. This is another critical time for him. The swelling is going down and he is starting to move around a little bit. Its so hard to see him move his arms and legs with his chest still open. Your sitting there watching your son's heart beat and wondering if he is in pain. The nurses promise me he is on good pain medicine. I personally can't imagine being him - He is such a fighter! Please continue to pray for him. I pray to him every night and tell him angels are all around him. That they are telling him all night long how much he is loved! I know his life has touched many people and my wish is that he will be a witness to someone someday because of his journey.
10-07-2010 ~ 6:oo am Update
Jordan is stable - The nurse said he had a good night. All of his levels are constant and remaining in his "sweet spot". PLEASE CONTINUE TO PRAY!
Wednesday, October 6, 2010
I would like to say THANK YOU to every single person that has been praying for Jordan. He is an amazing little boy. God has prepared him to be a fighter. There is no way we could have ever gotten this far without the prayers and support. Please continue to pray!
It has been a long and stressful day! We got to see Jordan this morning for an hour or so before he went to surgery. We knew that he needed positive energy so we went to see him with smiles on our faces. They let me hold him for a while before he went to surgery. We told him how awesome he was and how much we loved him. We were able to follow him to the operating room and once we got to the desk we had to say our goodbyes. The nursing staff kept saying you are the calmest parent we have ever seen but it was amazing that morning when we woke up there was a peace and calmness in us. I knew that God was with Jordan and the medical staff. I have seen the power of prayer for the past 6 day and its been an amazing experience. Surgery lasted approx. 6 hours - they called me hourly with updates. The phone would ring and your heart would stop, you would listen to the nurse with the update and you could get a sigh of relief, then you watched the time minute by minute until the next update. They carefully chose their words with the updates saying things like "everything is going as expected." Around 2 pm we talked to Dr Kirshbom and he said Jordan's surgery went as expected. They did have to leave his chest open but the nurses keep telling us it's better for him. You can never imagine going in and seeing your newborn son so helpless and actually seeing his heart pumping in his chest. It was an overwhelming experience to sit there in a daze and watch the nurses work on your son. They are constantly changing medications, his O2 levels, checking his chest tubes and drain tubes. There are tubes and wires all over him. It's a very humbling experience and all you can do is praise God for each minute. I have always heard the saying "what doesn't kill you, will make you stronger" well we have become firm believers in this saying. God has a purpose for this Little Guy! The first 36 hours are very critical - this is the time they are trying to find his "sweet" spot with all of his stats. When you sit there you watch numbers and hear alarms and pray that it's not the "bad" alarms. This is a lifestyle I never thought I would have to experience. We are adjusting and I can't imagine not sitting by his side and just looking at him. Due to the risk of infection, we can't even touch him. It's a terrible feeling when your arms ache to hold him and you can't even touch him.
We know the journey ahead of us it going to be long and hard but we know God has his hand on Jordan. God is guiding us to down unknown paths but we find comfort in so many little things. With the support of our amazing family and friends, we know that prayers are being lifted up and they are taking care of the "little things". Especially a BIG thanks to my mother as she sits and waits patiently to help get anything we need or want. The nurse told us the other day we could put some socks on him so Dee ran to the gift shop and bought his some socks. His first pair of socks he ever wore came from his Dee...could be trouble! She has already spoiled him so I guess its too late now. Thank you so much to Mallory and Greg as they run around like crazy people at home seeing about the mail, the dogs and anything else that comes up! Keep all of the prayers coming for us and all the other heart families!!!
It has been a long and stressful day! We got to see Jordan this morning for an hour or so before he went to surgery. We knew that he needed positive energy so we went to see him with smiles on our faces. They let me hold him for a while before he went to surgery. We told him how awesome he was and how much we loved him. We were able to follow him to the operating room and once we got to the desk we had to say our goodbyes. The nursing staff kept saying you are the calmest parent we have ever seen but it was amazing that morning when we woke up there was a peace and calmness in us. I knew that God was with Jordan and the medical staff. I have seen the power of prayer for the past 6 day and its been an amazing experience. Surgery lasted approx. 6 hours - they called me hourly with updates. The phone would ring and your heart would stop, you would listen to the nurse with the update and you could get a sigh of relief, then you watched the time minute by minute until the next update. They carefully chose their words with the updates saying things like "everything is going as expected." Around 2 pm we talked to Dr Kirshbom and he said Jordan's surgery went as expected. They did have to leave his chest open but the nurses keep telling us it's better for him. You can never imagine going in and seeing your newborn son so helpless and actually seeing his heart pumping in his chest. It was an overwhelming experience to sit there in a daze and watch the nurses work on your son. They are constantly changing medications, his O2 levels, checking his chest tubes and drain tubes. There are tubes and wires all over him. It's a very humbling experience and all you can do is praise God for each minute. I have always heard the saying "what doesn't kill you, will make you stronger" well we have become firm believers in this saying. God has a purpose for this Little Guy! The first 36 hours are very critical - this is the time they are trying to find his "sweet" spot with all of his stats. When you sit there you watch numbers and hear alarms and pray that it's not the "bad" alarms. This is a lifestyle I never thought I would have to experience. We are adjusting and I can't imagine not sitting by his side and just looking at him. Due to the risk of infection, we can't even touch him. It's a terrible feeling when your arms ache to hold him and you can't even touch him.
We know the journey ahead of us it going to be long and hard but we know God has his hand on Jordan. God is guiding us to down unknown paths but we find comfort in so many little things. With the support of our amazing family and friends, we know that prayers are being lifted up and they are taking care of the "little things". Especially a BIG thanks to my mother as she sits and waits patiently to help get anything we need or want. The nurse told us the other day we could put some socks on him so Dee ran to the gift shop and bought his some socks. His first pair of socks he ever wore came from his Dee...could be trouble! She has already spoiled him so I guess its too late now. Thank you so much to Mallory and Greg as they run around like crazy people at home seeing about the mail, the dogs and anything else that comes up! Keep all of the prayers coming for us and all the other heart families!!!
Tuesday, October 5, 2010
PLEASE PRAY
The day we have dreaded has now become reality. Jordan will have his first open heart surgery tomorrow morning at 7:15 am. We have met with several doctors today and we know the days ahead of us will be long and hard. But we have no doubt that Jordan was given to us for a reason and he will continue to be a blessing to us and many others. His life has touched our hearts to a point that we never could imagine. We look at him for hours and just wonder how something so perfect could have something wrong with his heart. We have fallen head over heels in love with him and we are praying for a miracle. We have seen God work in our lives and his life over the past 9 months and I know he won't stop now. Jordan has a purpose on this earth! People all over have been praying for this precious boy and we are asking for many more. Please pray for the doctors, medical staff, and for our strength in the days ahead. We are falling back on our faith and we know God is holding Jordan's hand! We have been told everyday how wonderful he is doing and how lucky he is that there are no other problems. All of his other test have been normal and he is completely healthy other than his heart. All the nurses want to take him home because he is so perfect! All of your prayers have helped us make it through this journey so far so please continue to pray as we take the next step tomorrow morning.
We are sorry we haven't been able to respond to many text, emails and phone calls but we have recieved everyone of them and we appreciate them all. Please keep them coming! Once things settle down we will keep in touch better but for now we are enjoying every second with our little boy.
We are sorry we haven't been able to respond to many text, emails and phone calls but we have recieved everyone of them and we appreciate them all. Please keep them coming! Once things settle down we will keep in touch better but for now we are enjoying every second with our little boy.
10/05/2010

I never knew what hospital time really was all about...Rhonda and I were in there with him yesterday and we looked at the clock and it was 6 pm. We are spending as much time with him as possible. Mama is here with us and she has be an awesome help. She takes second shift when we are at lunch, pumping or just need fresh air. He is so precious! We read to him, pray over him, and just tell him how much we love him. We've had 4 wonderful days with him!
Yesterday we ALL got to change his diaper and hold him. I was so excited! Rhonda was on cloud nine...she was instantly in love! All I can say to Jaxton is he better watch out. Jordan is going to be his competition! Dee has lots of love for her grandbabies and they are all so spoiled!
We are getting ready to go see him now and we will update everyone when his surgery will be as soon as we know something. The surgical board met yesterday afternoon and they said we should know something later today. The doctors don't make rounds until 6 pm so we are hoping they will tell us the plan then. We aren't ready mentally for the next step but we are ready to get him closer to being home where we can hold him and love on him all day long. Everyone please keep praying. We feel the prayers and he is doing so well. Thanks to everyone! God is good and he has blessed us in so many ways!
Yesterday we ALL got to change his diaper and hold him. I was so excited! Rhonda was on cloud nine...she was instantly in love! All I can say to Jaxton is he better watch out. Jordan is going to be his competition! Dee has lots of love for her grandbabies and they are all so spoiled!

Monday, October 4, 2010
Quick Update ~ 10/04/2010
~ He is stable and doing wonderful
~ He is on room air - they took him off the high flow cannula - He is doing really good breathing on his own
~ I got to hold him for the first time EVER - It was amazing! I am in love with him forever!
~ While I was holding him he pee'd on me - I didn't care - It was the best tee-tee!
~ I got to change his diaper for the first time....(wonder how many parents have taken changing their child's diaper for granted)
~ As soon as I had to put him back in his bed I needed to go pump and Thank God my milk finally came in. I have pumped many time (every 3 hours) with no luck! Jordan helped mama's milk come down. So excited I will be able to provide him with the best formula.
~ As soon as I had to put him back in his bed I needed to go pump and Thank God my milk finally came in. I have pumped many time (every 3 hours) with no luck! Jordan helped mama's milk come down. So excited I will be able to provide him with the best formula.
~ Rhonda's family came up and spent some time with us. They made us smile and laugh (something we really needed) and they got to see our precious little man.
~ We got to spend several hours just looking at him and praising God that he is doing so well!
~ We got to spend several hours just looking at him and praising God that he is doing so well!
When we got there after shift change he looked wonderful...The nurse has tucked him in nice and cozy. He was so content and happy. It made us so happy to know he would get a good nights sleep.
We are so blessed to have amazing friends and family. Some people are total strangers and they have given us amazing support. We are so appreciative and thankful! We couldn't have made it this far with out all the prayers! God has been good to us and i have faith that he will continue to walk with us down this unknown path!
We've been SO blessed today! I can't begin to express the feelings we have in our hearts tonight. GOD IS GOOD! Please continue to pray. We are still unsure of when his surgery will be but when we find out we will post because we will need SO MANY PRAYERS:
- For guidance of the doctors hands and giving him wisdom to help repair Jordan's heart
- For Jordan to find amazing strength within himself and come out fighting from surgery
- For the nurses to have knowledge and patience to take the best care ever of our little man
- We know there will be good and bad days but pray for us to have peace within us in the days to come and know that God will never leave our sides
- Please continue to pray all for the other heart moms and babies!
Friday, October 1, 2010
Jordan Lee Kleckley- 7lbs 11oz- 20 1/4 inches - 6:37pm

It's official!!! Our son has arrived. Even though it took most of the day, the labor went fairly smoothly. The midwife came in about 2:30 and said Wendy was dilated to 5cm and they increased the pitocin. She said that she would be back in 2 hours and that we needed to see steady contractions 2 to 3 minutes apart for the labor to progress enough to start the delivery. She came back around 4:30 and checked the cervix and we were all shocked to hear that Wendy was fully dilated. They moved her around some and said we want to give the baby 30 minutes to stabilize and then you will start pushing. At 5 they realized they had turned off the pitocin and turned it back on and said we will be back in a few minutes to see if you are contracting again. They came back in and said let's do this and Wendy did a wonderful job pushing. At 6:37 our son entered the world!!
We will update more and tell about the long details tomorrow once things get settled. Our journey has just begun and we still need LOTS of prayers. He is stable and in NICU - they started the medicine that will keep his heart working properly until surgery. One of the side effects of the medicine is his breathing will stop. Basically he forgets to breath. We went to see him at 12:15 am and they are debating on intubating him. He will be transferred out to Egleston in the morning. Please PRAY! Many prayers were answered to day and we felt everyone of them... Thanks for every ones amazing support!
I guess we better get used to waiting!!!
okay, now she is dilated to 5cm and they increased the pitocin so that the contractions will come more frequently. They said if she can get 2 hours of good 2 to 3 minutes apart contractions that will be enough to get things going for good. Wendy is still resting and enjoying feeling no pain right now. Jordan's heartbeat is looking great.
So we are hoping by 5pm we will be getting ready to get him out of there. Wendy is so ready for this to be over. They say he has a full head of hair just like Mama!!
Keep the prayers coming!!!
So we are hoping by 5pm we will be getting ready to get him out of there. Wendy is so ready for this to be over. They say he has a full head of hair just like Mama!!
Keep the prayers coming!!!
No turning back now!
We finally got moved to the labor room at 2:30 am. It was like a secret mission, they came in the night and gathered all of our things and we took off for the new room. Then they woke us up at 5:30 to take out the cervadel. Wendy was able to take a quick shower and of course straighten her hair. She was already having some contractions on her own. At 7 they started the pitocin and she was dialated to 2 cm. Everything was progressing as they expected. The midwife came in and broke her water, not a great experience for her.
She has had her epidural now and is resting getting ready for the action to come. Everybody here has been super nice to all of us. We will have a high risk team and neonatologist in the room during the birth to take care of Jordan as soon as he is born. The cardiologist will come soon after to do his evaluation.
Keep praying. We are hoping he will make his debut this afternoon or early evening.
Had to slow things down. Baby J was hiding from the monitors. Doing great now. Wendy's bp went down from the epidural but better now. She is still contracting on her own every 3 to 5 minutes. They will start the pitocin back up in 30 minutes or so and check her again and see what happens. She is resting now and he is doing great.
She has had her epidural now and is resting getting ready for the action to come. Everybody here has been super nice to all of us. We will have a high risk team and neonatologist in the room during the birth to take care of Jordan as soon as he is born. The cardiologist will come soon after to do his evaluation.
Keep praying. We are hoping he will make his debut this afternoon or early evening.
Had to slow things down. Baby J was hiding from the monitors. Doing great now. Wendy's bp went down from the epidural but better now. She is still contracting on her own every 3 to 5 minutes. They will start the pitocin back up in 30 minutes or so and check her again and see what happens. She is resting now and he is doing great.
Thursday, September 30, 2010
The Race Is ON...
After waiting the majority of the day, they have decided to get the party started. At 5:30 pm they put the cervadel in place and now we will see what happens. It will stay in place 12 hours at the longest then they will start the petocin approximately one hour after that. So I will get to have a quick shower. They are saying they will get started some time around 7a.m.
Then it's all up to Jordan to decide if he wants to come out and play or not. As long as there is no stress on him they will let me deliver him without a C-Section. If anything looks wrong they will change the plan though. We have a team of high risk specialists and a pediatric cardiologist that will be waiting to evaluate him as soon as he is born. They will all come and meet with us after their evaluations and let us know the plans for his treatment.
Please keep us in your prayers tonight as we get ready for the long road ahead. After nine months we will finally get to see his precious face. He is already spoiled rotten and we can't wait to spoil him more. Well, it is ambien time again so hopefully i can get some much needed rest before the big event. We are as always, praying for all of the other heart babies and their families tonight.
Then it's all up to Jordan to decide if he wants to come out and play or not. As long as there is no stress on him they will let me deliver him without a C-Section. If anything looks wrong they will change the plan though. We have a team of high risk specialists and a pediatric cardiologist that will be waiting to evaluate him as soon as he is born. They will all come and meet with us after their evaluations and let us know the plans for his treatment.
Please keep us in your prayers tonight as we get ready for the long road ahead. After nine months we will finally get to see his precious face. He is already spoiled rotten and we can't wait to spoil him more. Well, it is ambien time again so hopefully i can get some much needed rest before the big event. We are as always, praying for all of the other heart babies and their families tonight.
Taking the next steps!!
Well after lots of waiting, the Doctors have decided to go ahead and induce labor. There was lots of talk about waiting until Monday and having problems over the weekend and they consulted with the cardiologist and all decided it was best to go ahead and start the process today. They scanned me this morning and said he weighs 7 lbs 5 oz!
We are still in a holding pattern, imagine that. We are waiting to be transferred to another room and then they will start the cervadil to soften my cervix. From what they told us, unless I go into labor on my own prior to it they will start the induction Friday morning. So, hopefully before tomorrow is over our precious one will make his way into the world!! We are so excited and scared and feeling all kinds of crazy emotions.
Thanks for all of the messages and prayers. We are asking everyone to pray for all of the heart babies because some of the babies' blogs we have been following have been having hard times. We are just about to start many of the same things that they have all gone through and will need all of your support and prayers.
We are still in a holding pattern, imagine that. We are waiting to be transferred to another room and then they will start the cervadil to soften my cervix. From what they told us, unless I go into labor on my own prior to it they will start the induction Friday morning. So, hopefully before tomorrow is over our precious one will make his way into the world!! We are so excited and scared and feeling all kinds of crazy emotions.
Thanks for all of the messages and prayers. We are asking everyone to pray for all of the heart babies because some of the babies' blogs we have been following have been having hard times. We are just about to start many of the same things that they have all gone through and will need all of your support and prayers.
Sit and Wait
We've had a few hours of sleep between the monitors beeping and people coming in to check on things. We are still at a stand still... Not sure what the next step will be. A doctor just came in and said they are going to do an ultrasound and monitor my fluids. Then they will make a decision on the next step. They reassured me that they are all very aware of Jordan's condition and they are prepared. To us that is most important part. As soon as we know more information we will post an update. Please keep praying as the time will be coming soon...
The day has come!
We thought we were just going to see the high risk doctor for our final visit- we thought I would get scanned and hear its all good news and then I would go home and take a nap. Well he came in and said " What do you think about the weather"? We both agreed it was really nice. He said "Well it seems like a nice day to travel." We both just about had a stroke! He said I have already talked to the Doctors in Atlanta and they will be expecting you so don't rush but we think it's best to go ahead and induce. He said my amniotic fluid was low, not dangerously low, but there was no reason to wait.
We got here about 8pm and they hooked up an IV and the NST machine to check for contractions. They said the Dr would come in the morning and they would scan me and decide where to go from there. They gave me something to sleep and we will have to wait and see what happens in the morning. Keep all of the prayers coming. We hope that we will be seeing our little man some time tomorrow, well actually today since it's after midnight!!
We got here about 8pm and they hooked up an IV and the NST machine to check for contractions. They said the Dr would come in the morning and they would scan me and decide where to go from there. They gave me something to sleep and we will have to wait and see what happens in the morning. Keep all of the prayers coming. We hope that we will be seeing our little man some time tomorrow, well actually today since it's after midnight!!
Monday, September 27, 2010
6 MORE DAYS - Sept 28, 2010
We are one day closer to finally getting to meet our Little Monkey Boy!!! I know the next few days are going to be full of excitement and fears. I can't wait to see his precious face... I can remember being a kid and always saying when I have a baby his/her name will be Jordan. I always wanted a little boy with black hair, blue eyes and dark skin - guess we will see what God gives me. When I found out I was pregnant - everyone would ask me what do you want? Just like every pregnant women I would say "it doesn't matter as long as they are healthy". Well I have learned from experience that is an understatement. I would give my own heart for him... Just so he wouldn't have to suffer and hurt.

Here are a couple of pictures of his room. I can't wait to bring him home and show it to him... we wanted it to be perfect just for him!
I had my final OB doctors appointment today! Thank goodness... it was such a relief! I am so over going to the doctor every week but I am very thankful for ALL their help. It was kinda sad telling them bye and knowing the next time I see them I will have a little one with me. They have all be so supportive and caring. I couldn't ask for any of them to have been any more understanding.
It hasn't been the easiest pregnancy anyone could have. I was around 15 days pregnant when I was given my 30 day notice that I would no longer have a job due to lay offs. I was the last hired and I had to be the first one to leave. We had already heard rumors that they were going to do lay offs so I had put my house on the market to be sold. Due to the economy no one was buying so I kept patiently waiting for an offer. Around five days before my 30 day notice was up at work they gave me another 30 day notice. Which really helped because that just meant I had a job for 30 more days. But I was still fighting back the tears everyday wondering how would I afford insurance, house payment, etc. About 2 weeks after that my boss came to me and asked would I take a job about 45 mins from home at another hospital. With no questions asked I said "yes - when can I start". I didn't care what it was I just need a job thankfully my insurance would transfer and it would be a day shift job. So that was the first blessing! By now I had put my house up for rent. Anything to help with the payments. A couple came to me about renting the house and they were so excited about it. We agreed on everything and they signed a year lease. That was such a relief! Blessing number two! Then the day came when we found out about Jordan's heart defect - WOW!!! That was a life changing event. Our world was really turned up side down. I never thought of ever having anything but a health baby boy. It never crossed my mind that we would have to face these fears. Then I went into labor at 32 1/2 weeks and haven't been able to work since. But God has provided in so many ways since I went out of work. It has been totally amazing to see total strangers offering their help. We've been so blessed and words can never express how much we appreciate EVERYTHING everyone has done to make our lives a little easier. With all the set backs in the short 9 months, God has never left our sides.
God has given us this baby for a reason and I know that Jordan will have an awesome testimony when he gets older. I have saved every card, every flyer, every email and I will share it all with him once he gets older. I can't wait to show him how much he is loved and how many people were praying for him before he was even born. This whole experience has shown me more about life, my faith and strength that I would have never know had I not been faced with these fears. We have found ourselves asking God everyday for guidance, peace and healing. I know he is working through us to show others what blessings he has to offer.
Please keep praying for all of us, Jordan and the medical staff that will provide care for Jordan and I.
Friday, September 24, 2010
11 More Days
I just can't believe we are counting down the days... It seems unreal! If I knew we were having a healthy baby boy and that his quality of life would be just like most other babies I don't think you would be able to wipe the grin off my face. But the fear of the unknown is weighing so heavy on our hearts. I know we are so excited and can't wait to see his precious face but what's on the road ahead of us scares us to death!
We've been following several blogs since the day we found out about Jordan's heart condition. It has helped us get prepared in so many ways and its given us so much encouragement. But it also makes us so aware of the fears we could soon be facing. One family had their baby 6 days ago and they are fighting for his life right this second. Another family has been in the hospital with their baby for over a month and still have a long journey ahead of them. We find ourselves waking up to check their blogs and going to bed at night checking for updates. Even though we have no idea who these families are personally, their lives have affected ours and we are broken hearted for them. We pray for these children and their families just as much as we pray for our own. We know their hurt could be our reality in the next few weeks - it really hits home. I just want to ask everyone please pray for these families. God knows who they are!
I am personally doing good. Having some pains here and there but nothing too bad. I am still just resting and trying to get mentally and physically prepared for our journey. Life is about to take us in directions we have never faced. God is in control and I know he will see us through any fears we have. Please continue to pray for Jordan, the doctors and us as the time is coming so soon!
We've been following several blogs since the day we found out about Jordan's heart condition. It has helped us get prepared in so many ways and its given us so much encouragement. But it also makes us so aware of the fears we could soon be facing. One family had their baby 6 days ago and they are fighting for his life right this second. Another family has been in the hospital with their baby for over a month and still have a long journey ahead of them. We find ourselves waking up to check their blogs and going to bed at night checking for updates. Even though we have no idea who these families are personally, their lives have affected ours and we are broken hearted for them. We pray for these children and their families just as much as we pray for our own. We know their hurt could be our reality in the next few weeks - it really hits home. I just want to ask everyone please pray for these families. God knows who they are!
I am personally doing good. Having some pains here and there but nothing too bad. I am still just resting and trying to get mentally and physically prepared for our journey. Life is about to take us in directions we have never faced. God is in control and I know he will see us through any fears we have. Please continue to pray for Jordan, the doctors and us as the time is coming so soon!
Tuesday, September 21, 2010
13 MORE DAYS
I just want to THANK EVERYONE who had a part in the benefit sing for Jordan and I on
09-18-2010. It was TOTALLY AMAZING... It was such a blessing - all the support, time, effort, talent and donations. I felt God's presence in the church as soon as I walked in. God has blessed my life from the day I found out I was pregnant. He continues to show his love and mercy everyday! I don't know if words can ever describe the amount of appreciation we have for everyone that made that night special just for us and our family. The donations are so appreciated and will be used to help us on the unfamiliar road we are soon to face. But with the love and support of others I know we will be blessed. Please continue to pray for Jordan to have the strength to face the battles ahead of him, to give the doctors the knowledge and skill to fix Jordan's heart and for us to have the strength and patience to care for him along the way. We know that God is holding everyone of our hands and leading us down the path that he wants us to go down!
I can honestly say that being pregnant and knowing that your child has a heart defect will make your pregnancy a totally different experience. I don't know if its because the future is unknown and you don't want to take one second for granted or what. But I don't think there is a kick, punch or hiccup that is missed. Then when he isn't moving your worried something is wrong... I am starting to get a little sad thinking about him not being inside my tummy. I love to watch him move and feel him press on my lungs so bad that I can't hardly breath. It has been an amazing experience that I am so thankful for everyday! I can't imagine not having gone through the pregnancy and never taken one day for granted. The days are counting down...13 more days!
I stopped taking the Brethine on Friday 09-17-2010 around 10 a.m. We were a little nervous but content with the doctors decisions. By now he is 37 weeks and he is basically full term - all of his major organs are developed and properly functioning. The weekend went great! I rested A LOT and tried to pack a few little things to be prepared if he decided to come during the night.
I woke up yesterday 09-20-2010 and just didn't feel right. I started having some pains that were unfamiliar. I tried to ignore it but it wouldn't go away. So I decided I might better call the doctor. Of course their answer was for me to come on in and lets check things out. When I got there the pains had not stopped and may have even been a little worse. The hooked me up to the monitors (NST) and of course I was having contractions. Its funny how you know everything about all the machines because its just routine now. I could basically work all of them by myself if I needed to. The contractions weren't close enough that they were really concerned. He said for me to go home and go to bed. To take medicine for the pain and sleep as much as possible. He also mentioned that he didn't think I would make it until Oct 4th but for me to wait it out and come back in a week.
Today I had an appointment with my high risk doctor. Dr Edwards says Jordan is growing big and right on schedule. Other than his heart is a healthy little boy. He is starting the breathing process and his lungs look great. He reassured us that if I went into labor I knew to get to the hospital ASAP and to call the doctor on the way. That I didn't have 30 minutes to waste in registration. I will see him again in one week and that will be our last visit! Thank goodness because I am so tried of doctors appointments!
We are getting all of our last minute items washed and packed. I feel like we are as ready as we will ever be. I am so ready to see him and hold him in my arms. Thanks everyone again for all the love, support and prayers. I would also like to ask everyone to pray for the other HLHS babies. We have other blogs we've been following and most of their journeys haven't been as easy as they had hoped. God continues to bless each one of them but they are needing extra prayers to give them strength and faith.
09-18-2010. It was TOTALLY AMAZING... It was such a blessing - all the support, time, effort, talent and donations. I felt God's presence in the church as soon as I walked in. God has blessed my life from the day I found out I was pregnant. He continues to show his love and mercy everyday! I don't know if words can ever describe the amount of appreciation we have for everyone that made that night special just for us and our family. The donations are so appreciated and will be used to help us on the unfamiliar road we are soon to face. But with the love and support of others I know we will be blessed. Please continue to pray for Jordan to have the strength to face the battles ahead of him, to give the doctors the knowledge and skill to fix Jordan's heart and for us to have the strength and patience to care for him along the way. We know that God is holding everyone of our hands and leading us down the path that he wants us to go down!
I can honestly say that being pregnant and knowing that your child has a heart defect will make your pregnancy a totally different experience. I don't know if its because the future is unknown and you don't want to take one second for granted or what. But I don't think there is a kick, punch or hiccup that is missed. Then when he isn't moving your worried something is wrong... I am starting to get a little sad thinking about him not being inside my tummy. I love to watch him move and feel him press on my lungs so bad that I can't hardly breath. It has been an amazing experience that I am so thankful for everyday! I can't imagine not having gone through the pregnancy and never taken one day for granted. The days are counting down...13 more days!
I stopped taking the Brethine on Friday 09-17-2010 around 10 a.m. We were a little nervous but content with the doctors decisions. By now he is 37 weeks and he is basically full term - all of his major organs are developed and properly functioning. The weekend went great! I rested A LOT and tried to pack a few little things to be prepared if he decided to come during the night.
I woke up yesterday 09-20-2010 and just didn't feel right. I started having some pains that were unfamiliar. I tried to ignore it but it wouldn't go away. So I decided I might better call the doctor. Of course their answer was for me to come on in and lets check things out. When I got there the pains had not stopped and may have even been a little worse. The hooked me up to the monitors (NST) and of course I was having contractions. Its funny how you know everything about all the machines because its just routine now. I could basically work all of them by myself if I needed to. The contractions weren't close enough that they were really concerned. He said for me to go home and go to bed. To take medicine for the pain and sleep as much as possible. He also mentioned that he didn't think I would make it until Oct 4th but for me to wait it out and come back in a week.
Today I had an appointment with my high risk doctor. Dr Edwards says Jordan is growing big and right on schedule. Other than his heart is a healthy little boy. He is starting the breathing process and his lungs look great. He reassured us that if I went into labor I knew to get to the hospital ASAP and to call the doctor on the way. That I didn't have 30 minutes to waste in registration. I will see him again in one week and that will be our last visit! Thank goodness because I am so tried of doctors appointments!
We are getting all of our last minute items washed and packed. I feel like we are as ready as we will ever be. I am so ready to see him and hold him in my arms. Thanks everyone again for all the love, support and prayers. I would also like to ask everyone to pray for the other HLHS babies. We have other blogs we've been following and most of their journeys haven't been as easy as they had hoped. God continues to bless each one of them but they are needing extra prayers to give them strength and faith.
Wednesday, September 15, 2010
HLHS POEM
It's a beautiful day up in heaven. Jesus is rounding up
his tiniest angels, to go live on earth, and be born.
One of the sweetest angels says to Jesus
"I don't want to leave, I like it here, and I will miss you."
He reassures the scared little angel that everything will
be okay, and that he is just going for a visit.
He is still not swayed on this idea. So Jesus kneels
down and says, "How about if you leave half of your
heart here with me and take the other half with you,
will that be okay?" The angels smiles and says,
"I guess that will work." But the little angel is still
a little scared. He asks, "Will I be okay with only
half of my heart?" Jesus replies, "Of course you will,
I have other angels there that will help out, and
you will be fine." Then Jesus gives the angel
more details about his plan. He says
"When you are born, your mommy will be scared,
so you have to be strong, and when you feel weak
just remember that I have the other half of your heart."
"Enjoy your time with your family, play and laugh everyday."
"And when its time to come back to heaven, I will make
your heart whole again. Always remember that you are
not broken, just torn between two loves."
Tuesday, September 14, 2010
Final Appointments in Atlanta
September 14, 2010
We had a safe trip to and from Atlanta Monday. The doctors appointments went well and we've made all the final arrangements. Our first appointment was with the OB doctor. He said to come off the Breathine (meds to stop contractions) at 37 weeks which will be this coming Saturday. So I am a little nervous about that but he said Jordan will be considered full term and the medicine will not do any good after 37 weeks. If he wants to come he will come with the medicine or not. He said for us to be at Northside on October 3rd at 7 pm and they would start the procedures for inducing on October 4th. He explained the process and how they wanted the labor to go...if all goes as planned he will be born sometime that Monday afternoon.
When we induce, they will have ALL the doctors on standby waiting for his arrival. They said if he is stable I may be able to hold him for a few minutes. He will be taken to NICU for them to get him on the monitors and give him the medicine that will keep his heart functioning properly until surgery. That makes me really sad to know I've waited 9 months to get my hands on him and I won't even be able to enjoy that special time with him for long. But I want them to do what is best for him and if its getting him to the NICU, then that is what we will deal with. All of the people at Northside have assured us that they are ready for him and will know exactly what needs to be done. After he is stable and the doctors have looked at him, they will let some of the family go see him and once I am able they will let me go see him. I can't imagine how exciting it will be to finally get to see him. It breaks my heart to know I may not get to hold him for weeks though. I will be asking everyday "Can I please hold him" I know when the time is right they will allow me to but I want to feel him against me so badly. The cardiologist will do an ECHO within the first couple of hours and discuss the results with the surgeon and they will meet with us to discuss the next steps. His condition will determine ALL of the calls. If he is doing well they may keep him at Northside until I am dismissed if not they may have to take him on to Egleston. So my prayers are that he will be able to stay at Northside until I get to leave...can't imagine not being able to see him. Once he gets to Egleston the surgery will be scheduled and he will be the boss. We have to take this one step at a time now. Let's get him here first and then we will all figure out what he needs and go from there.
Our second appointment was with the perinatologist. They did an ultrasound and said my cervix is still closed (which is wonderful news) and then they scanned Jordan. He is growing good and starting to practice breathing on his own. That is a very good sign of his overall health. They say he weighs about 6 pounds give or take 6 ounces and is right on schedule. The appointment went well and she was very positive about his condition and they want me to continue resting until the big day!
With all the Atlanta doctors appointments behind us we are patiently waiting for the BIG DAY! It will be here before we know it. Can't imagine how our lives are about to change. We've waited on this day for many years! I've always wanted a little boy - now my dreams are coming true.
Thanks again to everyone who has prayed for us and Jordan. We continue to feel God's blessings everyday. Our next appointments are Tuesday with the OB and perinatologist in Albany. We will keep everyone posted.
We had a safe trip to and from Atlanta Monday. The doctors appointments went well and we've made all the final arrangements. Our first appointment was with the OB doctor. He said to come off the Breathine (meds to stop contractions) at 37 weeks which will be this coming Saturday. So I am a little nervous about that but he said Jordan will be considered full term and the medicine will not do any good after 37 weeks. If he wants to come he will come with the medicine or not. He said for us to be at Northside on October 3rd at 7 pm and they would start the procedures for inducing on October 4th. He explained the process and how they wanted the labor to go...if all goes as planned he will be born sometime that Monday afternoon.
When we induce, they will have ALL the doctors on standby waiting for his arrival. They said if he is stable I may be able to hold him for a few minutes. He will be taken to NICU for them to get him on the monitors and give him the medicine that will keep his heart functioning properly until surgery. That makes me really sad to know I've waited 9 months to get my hands on him and I won't even be able to enjoy that special time with him for long. But I want them to do what is best for him and if its getting him to the NICU, then that is what we will deal with. All of the people at Northside have assured us that they are ready for him and will know exactly what needs to be done. After he is stable and the doctors have looked at him, they will let some of the family go see him and once I am able they will let me go see him. I can't imagine how exciting it will be to finally get to see him. It breaks my heart to know I may not get to hold him for weeks though. I will be asking everyday "Can I please hold him" I know when the time is right they will allow me to but I want to feel him against me so badly. The cardiologist will do an ECHO within the first couple of hours and discuss the results with the surgeon and they will meet with us to discuss the next steps. His condition will determine ALL of the calls. If he is doing well they may keep him at Northside until I am dismissed if not they may have to take him on to Egleston. So my prayers are that he will be able to stay at Northside until I get to leave...can't imagine not being able to see him. Once he gets to Egleston the surgery will be scheduled and he will be the boss. We have to take this one step at a time now. Let's get him here first and then we will all figure out what he needs and go from there.
Our second appointment was with the perinatologist. They did an ultrasound and said my cervix is still closed (which is wonderful news) and then they scanned Jordan. He is growing good and starting to practice breathing on his own. That is a very good sign of his overall health. They say he weighs about 6 pounds give or take 6 ounces and is right on schedule. The appointment went well and she was very positive about his condition and they want me to continue resting until the big day!
With all the Atlanta doctors appointments behind us we are patiently waiting for the BIG DAY! It will be here before we know it. Can't imagine how our lives are about to change. We've waited on this day for many years! I've always wanted a little boy - now my dreams are coming true.
Thanks again to everyone who has prayed for us and Jordan. We continue to feel God's blessings everyday. Our next appointments are Tuesday with the OB and perinatologist in Albany. We will keep everyone posted.
Saturday, September 11, 2010
September 11, 2010
We had our third and final baby shower today! It was very nice and we got lots of good gifts for Jordan. He is all set and spoiled for sure! Thanks to everyone who helped make the shower special just for us and Baby Jordan!
I've had a boring week...nothing eventful at all! I went to the doctor Wednesday and they all agree that he is doing great and right on schedule. Dr Inman is very happy with his activity and say to keep feeding/watering him. Dr Edwards says he ready to be born anytime now to just let it happen. I feel a little differently about that. I am not ready for him to come just yet. I think the longer he stays inside the tummy the better he will be for surgery.
I am officially 8 months pregnant today! Can't believe how fast time has gone by. It seems just like yesterday I found out I was pregnant. The pregnancy has been a breeze other than the early labor. The stress from Jordan's diagnosis is a whole other story. We are ready for the next chapter in our lives - when our precious boy comes into this world.
We are leaving tomorrow to go to Atlanta for an OB appointment to make the final arrangements for his birth. We will keep everyone posted. Thanks for all of the love and support!
We had our third and final baby shower today! It was very nice and we got lots of good gifts for Jordan. He is all set and spoiled for sure! Thanks to everyone who helped make the shower special just for us and Baby Jordan!
I've had a boring week...nothing eventful at all! I went to the doctor Wednesday and they all agree that he is doing great and right on schedule. Dr Inman is very happy with his activity and say to keep feeding/watering him. Dr Edwards says he ready to be born anytime now to just let it happen. I feel a little differently about that. I am not ready for him to come just yet. I think the longer he stays inside the tummy the better he will be for surgery.
I am officially 8 months pregnant today! Can't believe how fast time has gone by. It seems just like yesterday I found out I was pregnant. The pregnancy has been a breeze other than the early labor. The stress from Jordan's diagnosis is a whole other story. We are ready for the next chapter in our lives - when our precious boy comes into this world.
We are leaving tomorrow to go to Atlanta for an OB appointment to make the final arrangements for his birth. We will keep everyone posted. Thanks for all of the love and support!
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